|
- Our Mission -
A Gift Of Pain Inc., will use this web site to be the internet support group for
all families affected by insensitivity to pain. It is the goal of this charity to
connect affected persons and families, provide education and support, and eventually
research into the neurological causes of insensitivity to pain.
Our own daughter Gabby suffered frequent injuries as a baby, and nobody could
tell us why. When we found out that Gabby did not feel pain, our
world was turned up side down. We did not know who to talk to or where to go for
help. There were no support groups, no other parents to talk to or discuss ideas.
Our one wish then was to talk with another family who had traveled this
uncertain painless path, someone we could connect with and share ideas.
Our wish was granted when Gabby's story was featured on local television, then
around the world via newspapers, magazines and radio. Through this exposure we
were surprised and pleased to hear from dozens of families around the world who
were dealing with the same condition, insensitivity to pain. Like us they wanted
to share their stories and help others.
Today the dream becomes a reality with A Gift Of Pain Inc.
We would now like to meet more families and use this web site as an
interactive support and discussion forum to share ideas and information.
Please sign in and tell us your story.
|
|
|
|
Here we will highlight medical and informational articles in our library
from various sources. If you have an article you would like to submit, please
email us.
|
|
· 10/5/06 - Congenital Insensitivity to Pain got a mention on the hit show "Grey's Anatomy" this evening!
· 12/9/05 - Gabby and the whole Gingras family will be on "Good Morning America"!
· 1/11/05 - We have received 501-3C status. See the donations page for details.
|
|